Where to get help and information

Patient organisations in Switzerland

The following patient organisations have been supporting people with Long COVID and ME/CFS (myalgic encephalomyelitis / chronic fatigue syndrome) for years. Their websites offer sound information and advice for those affected, their families and professionals.

• Long Covid Switzerland (long-covid-info.ch) was founded by people affected by the illness. The patient organisation advises those affected, for example on claims with the Swiss disability insurance (IV) and on patient rights. There is a flyer for family members and a guide for employers.
• ME/CFS Schweiz (mecfs.ch) supports those affected and their families with expert advice, practical help and personal guidance.
• The Schweizerische Gesellschaft für ME & CFS (sgme.ch) offers legal advice and a hardship fund. Its free information materials explain topics such as pacing, which means carefully budgeting energy.

Sources: Long Covid Switzerland: flyer for family members, 2026 (PDF), Long Covid Switzerland: documents and guides, Long Covid Switzerland: activity report 2025 (PDF), ME/CFS Schweiz: contact, SGME: information materials

Sharing experiences with others

Many of those affected say it helps to share experiences with others who are affected. It makes you feel less alone. Long Covid Switzerland offers moderated online groups for this in German and French. For its members, ME/CFS Schweiz has regional groups and groups for family members.

Sources: Long Covid Switzerland: information for those affected, ME/CFS Schweiz: about the association

Reliable information

In Switzerland, the official name for Long COVID is post-COVID-19 condition.

• The Swiss Federal Office of Public Health (FOPH) provides information at bag.admin.ch/de/post-covid-19-erkrankung.
• The World Health Organization (WHO) explains Long COVID in a fact sheet.
• Professionals can find the UK guideline on ME/CFS at nice.org.uk/guidance/ng206.

Sources: WHO fact sheet on Long COVID

Outside Switzerland

If you live in another country, please contact the patient organisation in your own country.